Ehlers-Danlos Syndrome (EDS) & Scoliosis Spine Specialist in NYC

Dr. Baron Lonner is an a best in class Ehlers-Danlos Syndrome (EDS) & scoliosis orthopedic spine surgery specialists with offices in NYC (Manhattan) and Long Island (Great Neck).

Ehlers-Danlos Syndrome (EDS) is a group of inherited connective tissue disorders that affect the body’s collagen—the protein responsible for providing strength and stability to the skin, joints, ligaments, blood vessels, and spine. Because collagen plays a critical role in supporting the musculoskeletal system, individuals with EDS are at an increased risk of developing spinal conditions such as scoliosis, kyphosis, spinal instability, and chronic back pain.

At Scoliosis & Spine Associates, Dr. Baron Lonner provides comprehensive evaluation and treatment for patients with Ehlers-Danlos Syndrome and associated spinal deformities. As one of the best scoliosis surgeons in NYC, a leading orthopedic spine surgeon in New York, and a trusted specialist serving Manhattan, Great Neck, Long Island, and the surrounding Tri-State area, and the world, Dr. Lonner develops individualized treatment plans focused on preserving spinal function, reducing pain, and improving long-term quality of life.

Dr. Lonner is the most professional, knowledgeable and caring doctor we’ve ever had the pleasure of dealing with. This was the scariest medical event I’ve ever had with any of my children. Dr. Lonner personally handled all my questions and concerns. I thank God we found Dr. Lonner!! ~Google

What Is Ehlers-Danlos Syndrome?

Ehlers-Danlos Syndrome refers to a group of genetic disorders that affect connective tissue throughout the body. There are multiple subtypes of EDS, each with varying symptoms and severity, but many patients experience joint hypermobility, ligament laxity, and increased flexibility that can place additional stress on the spine.

Although EDS itself does not always lead to scoliosis, connective tissue weakness may contribute to the development or progression of spinal deformities, particularly during periods of rapid growth.

How Does EDS Affect the Spine?

The connective tissue abnormalities associated with EDS can make the spine less stable and more susceptible to abnormal curvature or chronic pain.

Common spinal conditions seen in patients with EDS include:

  • Scoliosis (sideways curvature of the spine)
  • Kyphosis (excessive forward curvature)
  • Spinal instability
  • Chronic neck and back pain
  • Degenerative disc disease
  • Joint hypermobility affecting the spine
  • Poor posture and muscular fatigue

Some patients may also experience nerve irritation or neurological symptoms related to spinal instability.

Symptoms of Ehlers-Danlos Syndrome

Symptoms vary depending on the subtype but commonly include:

  • Joint hypermobility (“double-jointed”)
  • Frequent joint dislocations or subluxations
  • Chronic joint or back pain
  • Soft, stretchy, or fragile skin
  • Easy bruising
  • Muscle weakness
  • Fatigue
  • Poor balance
  • Scoliosis or abnormal spinal alignment

If scoliosis develops, patients may also notice uneven shoulders, rib prominence, uneven hips, or changes in posture.

Diagnosing EDS-Related Spinal Conditions

An accurate diagnosis begins with a comprehensive evaluation.

Your assessment may include:

  • Detailed medical and family history
  • Physical examination
  • Assessment of joint hypermobility
  • Neurological evaluation
  • Standing spinal X-rays
  • Cobb angle measurements
  • MRI or CT scan when appropriate

Because EDS affects connective tissue throughout the body, treatment is individualized based on each patient’s symptoms, spinal alignment, and overall health.

Treatment Options

Many patients with EDS can successfully manage spinal symptoms without surgery: non-surgical scoliosis options.

Treatment may include:

Observation

Mild spinal curves may simply require periodic monitoring to evaluate progression over time.

Physical Therapy

A customized rehabilitation program can help improve:

  • Core strength
  • Posture
  • Balance
  • Flexibility
  • Joint stability
  • Overall function
  • Pain Management

Conservative treatment may include medications, activity modification, and other non-operative therapies designed to improve comfort and daily function.

Bracing

For selected patients, bracing may provide additional spinal support or help manage progressive scoliosis during growth.

When Is Surgery Recommended?

Although most patients with EDS do not require surgery, it may be considered when:

  • Scoliosis continues to progress
  • Significant spinal instability develops
  • Chronic pain severely limits daily activities
  • Neurological symptoms occur
  • Conservative treatments no longer provide relief

Because connective tissue disorders require specialized surgical planning, treatment by an experienced spine deformity specialist is especially important.

Why Choose Dr. Baron Lonner?

Patients from Manhattan, Great Neck, Long Island, New York City, Westchester, New Jersey, and across the United States trust Dr. Baron Lonner for his expertise in treating both common and complex spinal deformities.

Our practice offers:

  • Board-certified orthopedic spine surgeon
  • Internationally recognized scoliosis specialist
  • Professor of Orthopedic Surgery
  • Expertise in connective tissue disorders affecting the spine
  • Advanced scoliosis and spinal deformity surgery
  • Personalized treatment plans for every patient
  • Comprehensive care from diagnosis through recovery
  • Decades of experience, thousands of surgeries performed

If you’re searching for the best scoliosis surgeon in NYC, a spine specialist in Manhattan, or an experienced orthopedic spine surgeon serving Great Neck and Long Island, our team is committed to providing compassionate, evidence-based care tailored to your individual needs.

Frequently Asked Questions

Can Ehlers-Danlos Syndrome cause scoliosis?

EDS does not directly cause scoliosis, but connective tissue weakness and joint laxity can increase the risk of developing spinal deformities or allow existing curves to progress.

Does every patient with EDS need surgery?

No. Most patients are treated successfully with observation, physical therapy, pain management, or bracing. Surgery is typically reserved for progressive deformity, spinal instability, or severe symptoms.

Should patients with EDS be monitored regularly?

Yes. Regular evaluations help monitor spinal alignment, identify curve progression, and determine whether treatment is needed as symptoms or growth change over time.

Schedule a Consultation

If you or your child has Ehlers-Danlos Syndrome and has been diagnosed with scoliosis, spinal instability, or chronic back pain, early evaluation by an experienced spine specialist can help guide the most appropriate treatment plan.

At Scoliosis & Spine Associates, Dr. Baron Lonner provides expert, personalized care for pediatric and adult scoliosis, spinal deformities, back pain, neck pain, and complex spine conditions. Serving patients throughout NYC, Manhattan, and Great Neck, Long Island, and the world, our practice is dedicated to advanced treatment and the highest standards of safety and care.

Patients seeking an experienced scoliosis surgeon in NYC, Manhattan, or Great Neck, Long Island can turn to Dr. Lonner for individualized treatment and advanced surgical expertise. Contact Scoliosis & Spine Associates today to schedule a consultation.

Scoliosis & Spine Associates
Baron Lonner, MD

1155 Park Ave, #1
New York, NY 10128
646-499-3715

Scoliosis & Spine Associateof Long Island
Baron Lonner, MD
833 Northern Boulevard, Suite 229
Great Neck, NY 11021
516-814-9399

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Credentials

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